I’m in the first year of treatment and this is the message I needed to hear the most. I am so isolated and most of it is my fault, I was never very social to begin with. But now I’m to the point where I can’t talk about what this is doing to me without tearing up b/c I’ve let it bottle up so much that I’m ready to burst.
I try so hard not to complain to my mother who began having symptoms of RA in the late 80s and went a decade without treatment because no one believed her and my fiance sees me every day. I cannot add to the burden I have already given him. There are many days when all I can do is lay in bed and sob while he rubs Voltaren on my neck, back, shoulders, and my horribly swollen hands.
I NEED SOMEONE in my life who I can talk to often, one on one, who gets this!
Is anyone else who feels this? Are other people getting the support they need from friends and family or do they – like me – feel like trying almost anything to find a real friend… a real RA friend? How do I find this person?
